tag:blogger.com,1999:blog-6744455104976721117.post3220451579979872019..comments2023-04-17T07:05:18.320-07:00Comments on See A Cure ● Uveal Melanoma: A Closer Look - TFSOMSee A Curehttp://www.blogger.com/profile/12719000456962025568noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6744455104976721117.post-51977185208236137442009-03-11T11:05:00.000-07:002009-03-11T11:05:00.000-07:00I know you wrote this awhile ago, so you may have ...I know you wrote this awhile ago, so you may have already been treated. I wanted to let you know that there are others out there in a similar situation.<BR/><BR/>I also have a nevus that's been watched for the past 2 years with no growth. I see an ocular oncologist yearly because it has been labeled "suspicious." Have you seen a specialist? Because this is such a rare cancer, not all optometrists have experience with it. There's a Choroidal Melanoma group on Yahoo where people share their experiences. It's been helpful for me, and maybe you would also find it to be a helpful place.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6744455104976721117.post-22512358631378878162008-08-26T19:04:00.000-07:002008-08-26T19:04:00.000-07:00I was diagnosed with a 'nevus' in 1993 (15 year ag...I was diagnosed with a 'nevus' in 1993 (15 year ago). It was ands still is 6.5x5.5x1.2 mm. It has orange pigment and fluid. It is near my center of vision and I am about 20/30 to 20/40 in that eye. It has not grown for 15 years, but with the advent of TFSOM, I am considering treatment before it grows. Mets, of course, is the concern here. I have heard there may be serious side effects with radiation and since I would lose most all of my vision in that eye anyway, I am planning on enucleation. Is anyone else in a similar situation?Anonymousnoreply@blogger.com